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Prinses Beatrix Spierfonds
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Trials & research
Updated: 01 apr 2010
Disorder  | Treatment | Centre | Start date  |
| PPS | None: Prospective follow-up study CARPA-II: natural course | AMC | 01-05-2002 |
| PLS | None, genetic and follow-up study | UMCU | 01-01-2006 |
| ALS | None, genetic research | UMCU | 01-01-2006 |
| ALS | None, biomarkers research | UMCU | 01-01-2006 |
| ALS, PLS, PSMA | Prospective epidemiologic and genetic research | UMCU | 01-12-2006 |
| ALS or PSMA | Neuropsychological tests and fMRI | AMC | 01-01-2007 |
| ALS or PSMA | Liquor analysis in motor neuron disease | AMC | 01-01-2007 |
| ALS | RCT: Botulinium vs radiotherapy | UMCN | 01-01-2007 |
| MG | RCT: Prednison vs prednison + thymectomie | LUMC | 01-01-2007 |
| MGUS | Rituximab | UMCU | 01-01-2007 |
| MMN | None, immunologic and neurophysiologic research | UMCU | 01-01-2007 |
| MMN | IVIg | UMCU | 01-01-2007 |
| ALS | Diagnostic study with muscle ECHO | UMCN | 01-01-2008 |
| ALS | Test effect of rTMS and TDCS with patients with ALS | UMCN | 01-01-2008 |
| DMD | RCT: exercise training vs. ctrl | UMCN | 01-01-2008 |
| DMD | TRIAL: Functional training with arm support in DMD | UMCN | 01-01-2008 |
| GBS | None, EMG study | ErasmusMC | 01-01-2008 |
| BMD | Epidemiology and natural course | LUMC | 01-03-2008 |
| CIDP | IVIg, prognostic factors for treatment effect | ErasmusMC | 01-03-2008 |
| GBS | None, immunologic and genetic research | ErasmusMC | 01-04-2008 |
| GBS | None, neuropathophysiologic research | LUMC | 01-04-2008 |
| IBM | None, pathogenesis natural disease course | LUMC | 01-04-2008 |
| IBM | None, pathogenesis; immunogenetic and degenerative mechanisms | UMCN | 01-04-2008 |
| LEMS | None, pathogenesis tumor vs. idiopathic forms | LUMC | 01-04-2008 |
| MFS | None, immunologic and genetic research | ErasmusMC | 01-04-2008 |
| MFS | None, neuropathophysiologic research | LUMC | 01-04-2008 |
| LHON | None, epigenetic factors | ErasmusMC | 01-04-2008 |
| Mitoch. disorders | Interval training | ErasmusMC | 01-04-2008 |
| Mitoch. disorders | None, clinical, biochemical and genetic characterisation | MUMC | 01-04-2008 |
| Mitoch. disorders | None, clinical, biochemical and genetic characterisation | UMCN | 01-04-2008 |
| Mitoch. disorders | None, study depression in mitochondrial disorders | UMCN | 01-04-2008 |
| Mitoch. disorders | Nutrition study and intervention | UMCN | 01-04-2008 |
| FSHD | RCT: Cycle training vs cognitive behaviourtherapy | UMCN | 01-04-2008 |
| MG | None, epidemiologic and genetic research | LUMC | 01-04-2008 |
| MG | None, study pathogenesis / pathophysiology | LUMC | 01-04-2008 |
| DM1 / DM2 | None, ECG, ECHO, MRI, EFO research | MUMC | 01-04-2008 |
| DM1 / DM2 | RCT: groupconsults vs. regular treatment | UMCN | 01-04-2008 |
| HNA | None, immunologic and genetic research | UMCN | 01-04-2008 |
| HNA | Study recovery and rehabilitation | UMCN | 01-04-2008 |
| OPMD | None, genotype-phenotype study | UMCN | 01-04-2008 |
| Pompe | None, study natural disease course | ErasmusMC | 01-04-2008 |
| Pompe | Myozyme: Study clinical effect and effect on muscle tissue | ErasmusMC | 01-04-2008 |
| PPS | RCT: Efficacy of exercise therapy and Cognitive Behavioral Therapy | AMC | 01-04-2008 |
| ALS | Intensive care-coaching for patients with ALS | AMC | 15-04-2008 |
| CIAP | None, research | UMCU | 01-07-2008 |
| ALS or PSMA | Motor unit tracking with EMG | ErasmusMC | 01-08-2008 |
| ALS | RCT: Lithium vs. placebo | AMC | 01-09-2008 |
| MG | Thymectomy via minimal invasive robotic surgery (Da Vinci Robot) | MUMC | 01-01-2009 |
| FSHD | 3-D walking-balans study | UMCN | 01-02-2009 |
| DMD | None, stem cell research | LUMC | 01-03-2009 |
| DMD | None, muscle MRI research | LUMC | 01-04-2009 |
| FSHD | None, research in (epi)genetic factors | UMCN | 01-04-2009 |
| CMT (HMSN) | None, genetic modifying factors research | AMC | 01-06-2009 |
| GBS | None, relation GBS and H1N1 vaccination | ErasmusMC | 01-11-2009 |
| CIDP | IVIg dose finding study | ErasmusMC | 01-01-2010 |
| GBS | TRIAL: 2nd IVIg treatment | ErasmusMC | 01-01-2010 |
| DMD | Study ankle-foot orthesis: spring swing | UMCN | 01-01-2010 |
| DMD | Swallow study | UMCN | 01-03-2010 |
| PSMA | None, study clinical- and biomarkers | UMCU | 01-03-2010 |
| SMA | None, study genetic- clinical and biomarkers in SMA | UMCU | 01-03-2010 |
| Kennedy | None, study genetic- clinical and biomarkers in Kennedy | UMCU | 01-03-2010 |
| MMN | Intravenous vs. subcutaneous IVIg | UMCU | 01-04-2010 |
| DMD | RCT: Idebenone | LUMC | 01-04-2010 |
| DMD | None, prognostic factors in heart failure | ErasmusMC | 01-04-2010 |
| PPS | None: Measuring loss of muscle function in PPS | AMC | 01-04-2010 |
| BMD | Serum profiling BMD | LUMC | 01-04-2010 |
| DMD | None, brain MRI research | LUMC | 01-05-2010 |
| GBS | None, cohort study of predictive factors for prognosis in GBS | ErasmusMC | 01-06-2010 |
| DMD | Phase I/IIa: exon skipping PRO044 | LUMC | 01-09-2010 |
| DMD | 3-D movement study arm-hand function | UMCN | 01-11-2010 |
| DMD | Phase II exon-skipping 51 | UMCN | 01-01-2011 |
| DMD | Phase III - efficacy and safety of GSK2402968 (PRO051) | LUMC | 01-05-2011 |
| ALS | Phase III: Dexpramipexol | UMCU | 01-06-2011 |
